ABOUT PROJE5T FOR ALS
Proje5t for ALS has been founded to identify and fund translational Amyotrophic Lateral Scierosis (also known as ALS or Lou Gehrig’s disease) research projects.
All donations to Proje5t for ALS will support its mission of improving the lives of people with this neurodegenerative disorder by promoting collaborative, translational research.
This idea of doing this kind of funding is unique. Most non-profits help many levels of their organization. Our focus is to raise money and give it directly to research projects. It’s that simple. We have no employees, and little overhead, so the donations that you give to support this foundation will go directly to finding a cure for ALS.
PERSONAL CONNECTION
Our friend Bob Willson was diagnosed with ALS in September 2007. The disease slowly robbed Bob’s ability to walk, speak, swallow and breathe.
Bob lost his battle with ALS on May 17, 2010. It is the mission of Proje5t for ALS to continue Bob’s vision of creating a Fifty million organization to help find a cure.
“You can give up or you can keep
going. I have an obligation to teach
my kids that when something bad
happens to you, you need to be
tough and go as long as you can
and as hard as you can,” Bob said.
“This disease is solvable. I probably
won’t make it to the finish line, but
we will win against ALS someday.”
Bob Willson
THE NEED FOR A CURE IS TREMENDOUS!
Federal funding for research and development into treatments for neurological disorders (like ALS)significantly lags the funding earmarked for diseases like AIDS and cancer.
While the federal government, through the National Institutes of Health (NIH) funds 36 percent of all U.S. medical research, only .5 percent of those funds are earmarked for research into neurodegenerative diseases by the National Institute of Neurological Diseases and Stroke (NINDS).
After several years of expansion, the NIH is about to experience slow or no growth. As a result, it is anticipated that only about 15 percent of approved NIH grants will actually be funded, and this number may be lower still in the next few years.
More broadly, NIH funding is less than 1 percent of total federal expenditures and just .5 percent of the total economic cost of illness in the U.S.
Disorders of the nervous system are the most common causes of disability for people of all ages. More than 50 million Americans have a permanent neurological disability that limits their daily activities; many are progressive or even fatal and the numbers keep growing.
There are multiple levels of aggressiveness within ALS, but only half of all patients make it more than three years. That’s a statistic that can discourage doctors, and one can only imagine how it makes patients feel. Bob Willson utilized his great support network of colleagues, friends and family as motivation to lead the fight toward finding a cure.
For more information, please visit us at www.project5forals.org |